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National
Autism Resources or Organizations
A
Association
for behavior Analysis (ABA)
www.abainternational.org
Association
for Positive Behavioral Support (APBS)
www.apbs.org
Association
for Person with Severe Handicaps, The (TASH)
www.tash.org
American Academy of
Child and Adolescent Psychiatry, The
3615 Wisconsin Ave., NW
Washington, DC 20016-3007
Phone: 202-966-7300
Fax: 202-966-2891
www.aacap.org
They provide important information as a public service to assist parents
and families in their most important roles.
Autism Options
3435 Camino Del Rio
South
Suite 107
San Diego, CA 92108
Phone: 619-280-8585
www.autism-options.com
They offer families
with autistic children ways to improve attention, motivation, behavior,
and motor skills using sensory techniques.
Autism Research
Institute (ARI)
4182 Adams Avenue
San Diego, CA 92116
Phone: 619-281-7165
Fax: 619-563-6840
www.autism.com/ari
ARI, a nonprofit
organization, was established in1967.
ARI is primarily devoted to conduction research, and to
disseminating the results of research, on the causes of autism and on
methods of preventing, diagnosing, and treating autism and other severe
behavioral disorders of childhood.
They provide information based on research to parents and
professionals throughout the world.
Autism Society of
America
7910 Woodmont Avenue,
Suite 300
Bethesda, MD
20814-3067
Phone: 301-657-0881
or 800-3AUTISM
www.autism-society.org
A national
organization with over 200 chapters in nearly every state of parents and
professionals that promotes a better understanding of autism, encourages
the development of services, supports research related to autism, and
advocates on behalf of people with autism and their families.
Acts as information clearinghouse about autism and services for
people with autism.
Publishes the Advocate, a bi-monthly newsletter.
Coordinates a national network of the state or local chapters.
For the location of the state of local chapter nearest you, call
the 800 number listed above.
Autism Speaks
2 Park Avenue
11th Floor
New York, NY 10016
Phone: (212) 252-8584
Fax: (212) 252-8676
contactus@autismspeaks.org
www.autismspeaks.org
Autism Speaks and National Alliance for
Autism Research (or NAAR and could be found at
www.naar.org)
have merged together.
Autism Speaks is dedicated to funding global biomedical research into
the causes, prevention, treatments, and cure for autism; to raising
public awareness about autism and its effects on individuals, families,
and society; and to bringing hope to all who deal with the hardships of
this disorder. It is a
nationwide alliance of families, researchers and others concerned with
autism united in their efforts to fund and accelerate autism research.
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BHARE Foundation, The
523 Newberry
Elk Grove, IL 60007
Barefoundation@aol.com
www.bhare.org
The Brenen Hornstein
Autism Research & Education (BHARE) Foundation’s top priority is to fund
research that will lead to a cure for autism.
Good summaries for parents are available along with information
regarding project funding.
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Center for the Study
of Autism
PO Box 4538
Salem, OR 97302
Phone: 503-538-9045
www.autism.org
The center provides
information about autism to parents and professionals, and conducts
research on the efficiency of various therapeutic interventions through
its website. Affiliated
with the Autism Research Institute.
Children’s Rights
Council
6200 Editors Park
Drive
Suite 103
Hyattsville, MD 20782
Phone: 301-559-3120
Fax: 301-559-3124
www.gocrc.com
The CRC is a national
nonprofit organization based in Washington, DC that works to assure
children meaningful and continuing contact with both their parents and
extended family regardless of the parents’ marital status.
Cure Autism Now
5455 Wilshire Boulevard, Suite 2250
Los Angeles, CA 90036 – 4272
Phone: (888) 8-AUTISM or (323) 549-0500
Cure Autism Now - Fax: (323) 549-0547
www.canfoundation.org
Cure Autism Now is an
organization of parents, physicians and researchers dedicated to
promoting and funding research with direct clinical implications for the
treatment and a cure for autism.
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Families for Early
Autism Treatment (FEAT)
PO Box 255722
Sacramento, CA
95865-5722
Phone: 916-843-1536
www.feat.org
FEAT is a
California-based organization with chapters in several states (links to
the state websites can be found at their website).
Among other things, FEAT publishes one of the most comprehensive,
informative, and activist newsletters in the autism community.
Federation of State
Medical Boards of the United States Inc. (FSMB)
PO Box 619850
Dallas, TX 75261-9850
Phone: 817-868-4000
Fax: 868-4098
www.fsmb.org
The FSMB website
allows you to research if there have been any serious disciplinary
actions or professional peer review against a physician you are
considering for your child.
For Parents Only.com
www.forparentsonly.com
This is a specialized
search engine connecting parents and information.
Free Appropriate
Public Education (FAPE)
www.fapeonline.org
FAPE site is intended
to be a beginning point for research by parents, educators, state and
federal staff members, and other interested parties into a wide range of
issues involving disabilities and disability law.
From Emotions to
Advocacy (FETA)
www.fetaweb.com
FETA, The Special
Education Survival Guide by Pam and Pete Wright, is an excellent
resource for special education information.
Fetaweb.com is the companion website to WrightsLaw.com
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H
Habitat for Humanity
International, Partner Service Center
121 Habitat Street
Americus, GA
31709-3498
Phone: 229-924-6935,
ext 2551 or 2552
publicinfo@hfhi.org
www.habitat.org
This is a nonprofit,
ecumenical Christian housing organization building simple, decent,
affordable housing in partnership with people in need.
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Introduction to the
Individualized Education Plan for Educators, An
www.altonweb.com/cs/downsyndrome.htm
This site discusses
developing an IEP for your child with special learning needs for
children who are taught at home. If
you home school a child with autism, you need to read this website.
Although written for children with Down syndrome, it is a very
useful resource.
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K
KeepKidsHealthy.com
www.keepkidshealthy.com
This website is an
excellent pediatric medicine website.
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Lovaas Institute for
Early Intervention (LIFE)
11500 West Olympic Boulevard
Suite 318
Los Angeles, CA 90064
Phone: (310) 914-5433
Fax: (310) 914-5463
info@lovaas.com
www.lovaas.com
LIFE is a research-based program that specializes in teaching children
with autism, pervasive developmental disorders, and related
developmental disabilities.
They also specialize in developing and implementing behavior
modification treatment programs for children with autism.
Backed by 35 years of research; the methodologies utilized by the
clinic were developed by Dr. Ivar Lovaas, professor of Psychology at the
University of California, Los Angeles.
The program provides services nationwide.
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Medicine Program, The
PO Box 515
Doniphan, MO
63935-0515
Phone: 573-996-7300
www.themedicineprogram.com
They Medicine Program
may be able to help you with medication expenses.
This organization was established by volunteers dedicated to
alleviate the plight of an ever-increasing number of patients who cannot
afford their prescription medication.
MyCityMyPlace.com
Philadelphia Mental
Retardation Services
1441 Sansom Street, 2nd
floor
Philadelphia, PA
19102
Phone: 215-686-0253
http://mycitymyplace.com
This website is a
directory of resources for people with mental retardation, families, and
professionals. Although
this site is not specifically geared toward those with ASD, it has
plenty of good information.
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National Information
Center for Children and Youth with Disabilities (NICHCY)
PO Box 1492
Washington, DC
20013-1492
Phone: 800-695-0285
or 202-884-8200
Fax: 202-884-8441
nichcy@aed.org
www.nichcy.org
NICHCY provides
information on disabilities and disability-related issues.
This is an invaluable organization that can link parents to
practically every government, nonprofit agency, and organization
involved in any way with disabilities. NICHCY’s website provides
extensive links and resources, organized into “State Resource Sheet.”
National Organization
of Social Security Claimants’ Representatives (NOSSCR)
800-431-2804
www.nosscr.org
NOSSCR@wordnet.att.net
NOSSCR has a referral
service for claimants looking for a private attorney and Social Security
benefit information and representation.
They also have a caller hotline number for SSI children’s
benefits. The referral is
free, the attorney will charge for the representation if the claim is
successful.
National Vaccine
Information Center (NVIC)
421-E Church Street
Vienna, VA 22180
Phone: 703-938-DPT3
Fax: 703-938-5768
www.909shot.com
NVIC is a national,
nonprofit educational organization founded in 1982.
It is the oldest and largest national organization advocating
reformation of the mass vaccination system.
Vaccines or immunizations are recommended for every child born in
the United States.
Vaccinations shouldn’t hurt a child but sometimes they do.
Before your child takes the risk, find out what it is.
Neuro-Immune
Dysfunction Syndromes (NIDS) Research Institute
NIDS Medical Advisory
Board
Phone: 888-540-4999
www.nids.net
NIDS Research
Institute is dedicated to increasing the public’s awareness of the
likely connection between neuro-immune and/or autoimmune dysfunction and
conditions such as autism, ADD, Alzheimer’s, ALS, CFS/CFIDS, MS, and
other immune –mediated diseases.
If your family has an autoimmune illness situation as well as
autism, you will want to check this out.
No Child Left Behind
(NCLB)
US Department of
Education
400 Maryland Avenue,
SW
Washington, DC 20202
Phone: 888-814-NCLB
Fax: 202-401-0689
www.nochildleftbehind.gov
NCLB website includes
a simple overview of the legislation, key dates to remember, frequently
asked questions, information about what is happening in states across
the country and more importantly, where you can go to learn more and
become involved. The goal
of NCLB is to create the best educational opportunities for our nation’s
children and to ensure that they have every opportunity to succeed.
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P
Parenting Special
Needs
http://specialchildren.about.com
The Special Children
site at About.com contains just about everything you need to know about
raising children with special needs.
Patient Centered
Guides’ Autism Center
O’Reilly Customer
Service
1005 Gravenstein
Highway North
Sebastopol, CA95472
Phone: 800-998-9938
or 800-889-8969
Fax: 707-829-0104
www.patientcenters.com/autism
This center is for
families of those living with pervasive developmental disorder.
Much of the material here is for those in the middle of the
autistic spectrum, particularly those with a diagnosis of PDD-NOS or
Atypical PDD or those still trying to find a correct diagnosis.
You can find articles and resources about PDDs, diagnosis, drug
treatments, therapies, supplements, education, insurance, family life,
other coping topics, and resources.
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R
S
Social Security
Administration
www.ssa.gov.
The Social Security
Administration website.
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U
V
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WrightsLaw.com
www.wrightslaw.com
WrightsLaw.com is one
of the most thorough websites regarding autism and special education.
Parents, advocates, educators, and attorneys come to Wrightslaw
for accurate, up-to-date information about special education law and
advocacy for children with disabilities.
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